Malignant Melanoma
A Personal Story
Part 2
by Rebecca Brents

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Papashag writes:
Bec, you can use anything I
wrote in this email with my blessing. I got a little wordy on a few things so
you can take editorial liberty on what you want to use.
Check out the web site I added
below, it is very informational. I have read Dan's Story several times and it
really hits home. If I would have only known - Hey what a subtitle for the
page: "IF I WOULD HAVE ONLY KNOWN - MELANOMA INFORMATION AND A GUIDE TO SELF
EXAMINATION."
Rebecca Brents wrote:
Patrick, love, I would like to
put up a page on the site with this that you sent a while back ... and in order
to give credit to you as a cancer survivor ... how exactly would you like us to
refer to your condition now ... what would you be comfortable being called? (I
know this isn't good English ... but I'm not coming up with anything more
elegant at the moment.)
Are you "in remission?" Are you
considered "cured?"
Papashag writes:
I am indeed in remission.
I will never be cured. There is
always a chance that the Melanoma will come back in the lungs, liver, bone
marrow or brain tissue. I will need a periodic CT scan and annual visual
dermatology exam. I am now doing the monthly skin test and if I find anything
unusual I bring it to my Doctors attention. So far I have 23 atypical(non
cancerous) moles and "freckles" that could change at any time. I have an 80%
chance that this bout is over. However I have a 33% chance that at some time in
my life 2, 5, 15 years from now I will have Melanoma again, in the same area or
in a different area.
I cannot dwell on this fact or I
just might as well lay down and die right now. Well, I am not ready to cross
over to see what is on the other side, just yet. I am scared all the time about
the CA coming back but that cannot be the focus of my life. If the CA comes
back I will deal with it at that time.
My father was in remission for 7
years before his cancer reappeared. But he refused to go for his annual 5000,
10000, and 15000 mile checkups. He might still be alive today if he had stayed
under doctor's care. I plan on being around for a long time.
Are you considered indeed a
"cancer survivor" at this point?
I am not comfortable with the
term cancer survivor, just yet. I consider myself "in remission, recovering
from a long bout of therapy and treatment."
Is it correct to call your
former condition "malignant melanoma?"
Yes it was Malignant
melanoma
Is there anything you would like
us to include ... about you, about prevention, about treatment, anything? Are
you ok with us doing this in the first place?
Melanoma is a disease that, on
the skin surface, can easily be detected. If people just follow a few simple
rules and do a monthly body scan corrective action can be taken before it gets
as far as mine. If caught in time the treatment can be minimal. Here is a web
page that I found that people can read up on Melanoma. About half way down the
page are a series of small downloadable pages. Just click on the tiny pages, on
the left hand side and they will expand. Very good info.
http://skincheck.com/mef_page_3.htm
I think this is an important
chance for us to "spread the word" about this matter, and the hope you offer
through the trial of your experience to others who could profit from your
wisdom.
Rebecca
Thank you for all your prayers
and support. You don't know how email is keeping me afloat on some of the bad
days. It is great to hear from Good Friends, even Bad Friends suit the bill.
Blessings of the Goddess to you and yours.
Patrick
~*~*~*~*~*~*~*~*~*~
On Sun, 11 Feb 2001 11:51:30
-0800 (PST) Patrick Shaginaw wrote:
Well after 172 injections of
Interferon, I am finished with my treatment. It will take 4 to 8 weeks for the
drugs to get out of my system. I have taken more Compozine for nausea since I
stopped the treatment then I have in the past 2 months of the treatments. I
guess my body is going thru a type of therapy withdrawal. Went to a party at
church last night, and stayed out until 11 pm. I remember a time not to long
ago that I would just be going out at 11 PM. Now I am in bed by 9 because I am
still so exhausted.
This is something that I got
off of one of the cancer caring websites that I frequent. It can say things
that I don't know how to put into words:
What Cancer Survivors
Need:
a.. When we are terrified -
tell us you're there.
b.. When we cry - accept it.
c.. When we cannot
focus on the conversation - fill in for us.
d.. When we awaken scared - hold
us.
e.. When we tell our story for the millionth time - remember it's
real.
f.. When nightmares keep us awake - be patient.
g.. When we go for
our 6,000, 12,000 or 24,000 mile checkup - be there.
h.. When our treatment
is over - remember this does not end for us.
i.. When we don't know who we
are - tell us we are somebody.
j.. When we are optimistic - help us
appreciate the day.
Author Unknown
Blessings of whatever you
believe in, always.
Patrick